42 Websites:Organisations:Summaries:Related categories:Related keywords:Related locations:
spierfonds.nlPrinses Beatrix SpierfondsThe Prinses Beatrix Spierfonds is an organization dedicated to funding and promoting research and treatment for muscular diseases.Disease & Treatment → Medicine 1017 Disease & Treatment → Rare Diseases 229 gene therapy 10 donation 5110 research 8967 collaboration 16036
energy4all.nlStichting Energy4AllStichting Energy4All is an organization dedicated to researching and combating mitochondrial diseases.Disease & Treatment → Diseases 829 Disease & Treatment → Rare Diseases 229 medical 216 disease 285 medicine 435 foundation 6678 research 8967
stophersentumoren.nlSTOPhersentumoren.nlThe STOPhersentumoren.nl Foundation is an organization that raises funds for research into brain tumors.Charities → Fundraising 1005 Cancer → Brain Tumors 11 brain tumor 17 peer support 68 donation 5110 foundation 6678 research 8967
kindengroei.nlStichting Kind en GroeiThe Stichting Kind en Groei is a knowledge center focused on the growth and development of children, with a special focus on abnormal growth and the Prader-Willi syndrome.Research → Medical Research 384 Disease & Treatment → Neurological Disorders 100 diagnosis 1490 growth 4054 research 8967 treatment 21203
ushersyndroom.nlStichting UshersyndroomThe Stichting Ushersyndroom is an organization dedicated to research and awareness regarding Usher syndrome.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 awareness 1735 patient 4082 foundation 6678 research 8967
dvnexpertisecentrum.nlSpierziekten Centrum NederlandThe DVN Expertisecentrum website provides information and support for patients and healthcare professionals dealing with thin-walled neuropathies (DVN).Disease & Treatment → Cardiovascular Diseases 91 Disease & Treatment → Rare Diseases 229 healthcare professionals 235 diagnosis 1490 patient 4082 research 8967 treatment 21203 Limburg → Maastricht 6008
stofwisselkracht.nlStichting StofwisselkrachtThe Stichting Stofwisselkracht is an organization that directs funds for research and activities related to metabolic diseases.Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 patient 4082 partner 4272 donation 5110 research 8967 event 45199
hetsikkelcelfonds.nlThe SikkelcelfondsThe Sikkelcelfonds is an organization that primarily funds scientific research into sickle cell disease with the ultimate goal of promoting a treatment and potentially a cure.Disease & Treatment → Diseases 829 Disease & Treatment → Rare Diseases 229 stem cell transplant 12 nijntje 16 donation 5110 research 8967
voorsara.nlStichting Voor SaraThe website ‘Fighting Rare Muscular Dystrophies | For Sara’ is focused on fundraising and support for patients with Lama2-MD and other rare muscle diseases.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 fighter 23 artwork 2248 donation 5110 foundation 6678 research 8967
stichtinglongcovid.nlLong COVID FoundationThe Long COVID Foundation aims to raise funds for biomedical research into the cause and treatment of Long COVID.Animal Welfare → Animal Protection 173 Disease & Treatment → Rare Diseases 229 long covid 42 donation 5110 foundation 6678 volunteer 8367 research 8967
stichtingijzersterk.nlStichting IJzersterkStichting IJzersterk is a Dutch foundation dedicated to research and support for patients and families affected by brain iron accumulation (NBIA).Patient Services & Rights → Patient Information 158 Disease & Treatment → Rare Diseases 229 iron 237 diagnosis 1490 patient 4082 research 8967
noordzeeziekte.nlStichting NoordzeeziekteThe Stichting Noordzeeziekte is dedicated to funding scientific research into this rare disease, with the hope of developing a future treatment.Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 subsidy 2649 foundation 6678 research 8967 Netherlands → Groningen 23734
cidpexpertisecentrum.nlSpierziekten Centrum NederlandThe CIDP Expertisecentrum is an expertise center providing information and advice to patients and healthcare providers about the condition CIDP (Chronic inflammatory demyelinating polyradiculoneuropathy).Disease & Treatment → Rare Diseases 229 peer support 68 diagnostics 687 research 8967 treatment 21203 Rotterdam → Center 382
stichtingziektevanpompe.nlStichting Ziekte van PompeThe Stichting Ziekte van Pompe is an organization dedicated to research, support, and awareness regarding Pompe disease.Diseases → Neurological Diseases 21 Disease & Treatment → Rare Diseases 229 board 3438 patient 4082 donation 5110 foundation 6678 research 8967
sca1research.nlSpinoCerebellaire Ataxie type 1 Research TeamThe website aims to inform patients and family members affected by SpinoCerebellaire Ataxie type 1 (SCA1).Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 team members 68 contact form 270 research 8967 news 15293
airforall.nlStichting Air for AllStichting Air for All is a foundation dedicated to research, better treatments, and increased awareness surrounding Cystic Fibrosis (also known as cystic fibrosis).Animal Welfare → Animal Protection 173 Disease & Treatment → Rare Diseases 229 awareness 1735 research 8967 collaboration 16036 treatment 21203
golfenvoortim.nlTim FoundationThe website of the Tim Foundation aims to raise funds to support research and projects focused on developing medications and treatments for energy metabolic diseases.Neurology → Multiple Sclerosis 64 Disease & Treatment → Rare Diseases 229 disease 285 medication 1164 donation 5110 research 8967 energy 9075 collaboration 16036
energy4finn.nlStichting Energy4FinnThe Energy4Finn website is a foundation dedicated to fundraising for research and development of a medication against energy metabolic disorders, aiming to stop the disease and improve the quality of life for affected children.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 medical 216 disease 285 donation 5110 research 8967 energy 9075 event 45199
fuckingcic.nlStichting F*CKING CICThe website of F*cking CIC is an initiative focused on fundraising for research into CIC DUX4, a rare form of cancer, and providing support to patients and their families.Diseases → Cancer 546 Disease & Treatment → Rare Diseases 229 cancer 631 podcast 3328 donation 5110 research 8967
stichtinghuidlymfoom.nlStichting HuidlymfoomThe Stichting Huidlymfoom website provides information and support to patients, relatives, and professionals dealing with cutaneous lymphooma.Disease & Treatment → Rare Diseases 229 patient 4082 research 8967 care 12338 collaboration 16036
rare-nl.nlRARE-NLRARE-NL is a national collaboration hub focused on the development of medicines for rare diseases and drug repurposing.Personal Stories → Illness Stories 13 Disease & Treatment → Rare Diseases 229 disease 285 innovation 4659 therapy 7448 research 8967 collaboration 16036 Netherlands → Utrecht 48901
rownederland.nlStichting ROW/HHT NederlandThe Stichting ROW/HHT Nederland is a foundation dedicated to improving the quality of life for patients with the rare genetic disorder ROW/HHT and promoting scientific research.Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 rowing 243 patient 4082 research 8967 event 45199 South-Holland → Leiden 7089
dolls-house.nlStichting Poppenhuizen voor Mito OnderzoekThis website provides information about dollhouses and supports research into mitochondrial disorders in children.Shopping → Hobbies 5234 Disease & Treatment → Rare Diseases 229 dollhouse 86 architect 609 donation 5110 research 8967 news 15293
smilevooricell.nlSmile for I-CellThis website provides information about I-Cell Disease / Mucolipidose 2 and the experiences of a family with this rare condition.Personal → Personal Stories 1027 Disease & Treatment → Rare Diseases 229 disease 285 family 6462 research 8967
bollenstreekfonds.nlBollenstreekfondsThe Bollenstreekfonds raises funds to support groundbreaking cancer research, specifically focused on early detection through blood testing.Community & Social → Social 154 Disease & Treatment → Rare Diseases 229 lumc 17 blood test 200 fundraising 322 cancer 631 research 8967
rickjonckheerefoundation.nlRick Jonckheere FoundationThe Rick Jonckheere Foundation is an organization dedicated to raising awareness and funding research for CVID, a rare autoimmune disease, established after the unexpected death of Rick Jonckheere, a drum student at the Rock Academy.Personal Stories → Illness Stories 13 Disease & Treatment → Rare Diseases 229 disease 285 donation 5110 research 8967 event 45199 Tilburg → Old South 72
stichtingacd.nlStichting ACDThe Stichting ACD is dedicated to fighting Alveolaire Capillaire Dysplasie (ACD) and raising funds for research.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 foundation 6678 research 8967
stichtingrolina.nlStichting RolinaThe Rolina Foundation is dedicated to researching the rare and aggressive brain tumor H3 K27 M and seeking a solution for patients diagnosed with this disease.Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 tumor 50 drugs 105 disease 285 research 8967 treatment 21203
1op5.nlStichting 1 op 5The Stichting 1 op 5 organization works to improve care for patients with rare cancers.Specialty Medicine → Cancer Care 97 Disease & Treatment → Rare Diseases 229 cancer 631 patient 4082 donation 5110 research 8967 care 12338
careforqualityoflife.nlCare for Quality of Life FoundationThe Care for Quality of Life Foundation is a foundation dedicated to improving the quality of life for individuals with rare diseases and accelerating innovation in their treatment.Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 exoskeleton 12 antibiotics 29 research 8967 music 13170
hersentumoronderzoekfonds.nlBrain Tumor Research FundThe Brain Tumor Research Fund aims to achieve as much (inter)national brain tumor research as possible with limited resources.Cancer → Brain Tumors 11 Disease & Treatment → Rare Diseases 229 brain tumor 17 cure 20 money 582 research 8967 collaboration 16036
stichtingeckroosen.nlStichting Eck RoosenThe website of Stichting Eck Roosen aims to raise funds for fundamental research into the treatment of pancreatic cancer.Charities → Fundraising 1005 Diseases → Cancer 546 cancer 631 donation 5110 foundation 6678 research 8967 event 45199
stopdekatwijkseziekte.nlDutch CAA Foundation and Vereniging HCHWA-DThis website provides information and facilitates participation in research related to the Katwijkse Ziekte.Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 lumc 17 disease 285 participation 1430 donation 5110 association 8562 research 8967
kat6a.nlStichting KAT6A Syndroom NederlandThe website of Stichting KAT6A Syndroom Nederland is an information platform and support resource for awareness and support surrounding the rare KAT6A syndrome, a genetic disorder diagnosed in approximately 25 individuals in the Netherlands.Wellbeing → Child Well-Being 28 Disease & Treatment → Rare Diseases 229 donation 5110 research 8967
1000kaarsjes.nlStichting 1000 kaarsjes voor JuultjeThe Stichting 1000 kaarsjes voor Juultje is a fund dedicated to scientific research into the rare disease LCH.Animal Welfare → Animal Protection 173 Disease & Treatment → Rare Diseases 229 donation 5110 foundation 6678 research 8967
tscfonds.nlStichting TSC FondsStichting TSC Fonds is a capital fund that finances and promotes scientific research into Complex Tubereous Sclerosis.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 fund 1063 research 8967 education 13471 collaboration 16036 North-Holland → Amsterdam 41253
kirstenskopgroep.nlKirstens KopgroepThe website of Kirstens Kopgroep is an initiative to financially support Kirsten ten Thije and others with a brain tumor and offer them a future perspective.Charities → Fundraising 1005 Cancer → Brain Tumors 11 fund 1063 donation 5110 research 8967 news 15293 event 45199
behandelinginhetbuitenland.nlMercante MediaThe website behandelinginhetbuitenland.nl aims to provide information and a platform for patients considering medical treatment abroad.Research → Medical Research 384 Health → Medical Care & Services 29461 crowdfunding 246 patient 4082 research 8967 treatment 21203
oog-genootschap.nlOog Onderzoek GenootschapThe Oog Onderzoek Genootschap aims to co-finance scientific eye research and inform patients with eye diseases and their relatives about the progress of these (inter)national eye research projects.Medical Care & Services → Ophthalmology 92 Disease & Treatment → Rare Diseases 229 gene therapy 10 disease 285 study 720 donation 5110 research 8967 Amsterdam → Southeast 815
shirley4cf.nlShirley4CFShirley4CF is an organization dedicated to fighting Fabry disease and raising funds for research.Social Services → Welfare 1001 Disease & Treatment → Rare Diseases 229 account number 19 facebook 850 donation 5110 research 8967
stichtingteun.nlStichting TEUNThe Stichting TEUN is an organization dedicated to raising funds for research into Emery Dreifuss and other muscle diseases.Social Organization → Child Welfare 1147 Disease & Treatment → Rare Diseases 229 brother 83 disease 285 future 404 parent 4318 foundation 6678 research 8967
jobkwffonds.nlJob KWF FondsThe website aims to raise awareness and funds for research into Ewing Sarcoma, a rare form of bone cancer, and to establish a research fund.Diseases → Cancer 546 Disease & Treatment → Rare Diseases 229 crowdfunding 246 cancer 631 fund 1063 donation 5110 research 8967